Migraine Disease Is Not FUNny

                    
via GIPHY

Suffering from Migraine Disease will never be fun. I guess I'm stating the obvious, for anyone who is suffering with this invisible disease. I've suffered with the disease since the early '80's and it has never been fun. With this said, I have always tried to find the funny in the world.

I spend too much time in the dark confines of my bedroom. Blackout shades, no lights, no odors, no noise, and really no human contact. What does your brain do in this kind of environment? You either focus on the negative, or turn to thinking about, imagining, or questioning the world that exists outside of your cave. I choose the latter. I last had the ability to work at a professional career in 2008. Since then, I have experienced an average of 16 migraine days per month. So, when I'm in my carefully constructed migraine environment friendly cave, with an eye mask, icepack, and pillow on my head; I dream of the good 'ol days, and I think of the interesting, odd or funny things in life.

I have to do something to keep my mind distracted between the pain and sleep. I choose to analyze the world and attempt to find the funny. As I'm able, and remember, I keep notes on my phone of the strange things my brain comes up with. It can be scary, for the uninitiated and myself, to see the weird and funny things that pop into my mind. I have been a clown my whole life and I have no problem with people laughing with or at me.

When I'm down for the count, I push myself to think about things and not pain. I don't think, Why me? I think about the why's of the world. I put square pegs in round holes, solve world hunger, and cure cancer. Don't I wish. The funny is there if you allow yourself to think about it. I like to make myself and others laugh. When I'm stuck in my own head, I seek the funny. I make up jokes. They're not all great, not all laughable, or even something I can share with others. But, I try to remember the good stuff and write it down at my next opportunity.

When the "Monster" isn't on my back, I make the most of every moment. Trying to stay active is https://giphy.com/gifs/car-head-window-aBfSGPDRDSdqw
difficult at best. Between Aura, Prodrome, Migraine, and Postdrome, it can be very hard to be any kind of active. There are times when those around you up and moving and assume that your '100%. Having 16+ migraine days a month also means that you can have 3x that, while suffering the other three phases of migraine disease. Just believe me that the math works according to my limited knowledge of 'new math'. With the time that is available to me, I try to have fun.

Active days mean that my body and my brain are alert enough to participate in life, and when I do, MY PEOPLE know about it! You can hear my joy for miles! I have a bounce in my step, laugh at the stupid, joke around, and hang my head out of the car window and howl at the fresh air. Most times I'm even more gangster than that.

I've recently found stand-up comedy open mic nights. When my non-communicable disease (put smiley face here) allows me to get out of the house and there's a show, I go laugh. I laugh with others and I laugh at myself. I laugh at the absurd and the sublime. I make new friends and we laugh together, at least on the inside.

I urge my fellow migraine and invisible illness sufferers to take the opportunities they have to get out and live, when you can. Take chances. Don't be afraid or embarrassed. YOLO, You Only Live Once, so howl at the wind!

Pardon my rambling,

Migraine Ninja

I have a few ninja skills when it comes to my migraines. You wouldn't know it to look at me. You're not supposed to be able to see or know that someone is a ninja. 

The ninja to the left is my daughter. Unfortunately she also suffers from migraine, but not as bad as mine. Her ninja skills are not as developed as mine either. I am in this photo, but I'm invisible to the naked eye.

I can/do withstand some excruciating pain. The kind of pain that we migraineurs suffer would bring a normal, healthy person to their knees. Others, with an invisible illness may have this same skill. I know that there are other ninjas in pain, out there.

I can sense a migraine about to attack. I usually get some kind of warning when an attack is about to begin. Similar to spidey senses. A flash of light, floaters in my left eye, a powerful smell.

I can leave the room and go back to bed without anyone noticing. I can disappear in a flash, even in a room full of people. I don't announce that I'm going back to bed. I just go.

What was that sound? That was the sound of me leaving the room and going back to bed... That sound is the sound of silence.

What ninja skills do you have?

 

Migraine; You Scream, Ice Cream

It's true. Some migraine sufferers are finding relief in eating what we used to scream for as children. Ice cream, no matter what flavor, when eaten fast enough, may alleviate the head pain of a migraine.

Ice Cream headache, known as sphenopalatine ganglioneuralgia (betch ya can't say that 10 times fast), means "nerve pain of the sphenopalatine ganglion" and is caused by a sudden application of a very cold substance touching the roof of your mouth or palate. It is believed to result from a nerve response causing rapid constriction and swelling of blood vessels.

Sure, it hurts, but only for a few minutes. Some find that when the brain freeze subsides, the migraine recedes as well. Why? Medical professionals are not currently sure. More and more victims of severe head pain are trying this as a remedy and finding some relief.

That's the name of the game, isn't it? Finding something that gives us relief from our migraines. Even if it only lasts a little while, its worth trying at least once.

What's your favorite flavor? Do you prefer a sorbet, or a popsicle to ice cream? Just make it cold and eat it fast. Let me know if this does or doesn't work for you. I want to know.

 

25,000+ Migraine Views

Today, I have hit a milestone. I think 25000+ views of my blog is pretty special. When I started in November of 2008 I was very discouraged. I had the belief that "all you have to do is build it and they will come". Well, anyone writing a blog today, knows how funny that is. It takes a lot more than building it. It takes advertising through Twitter, Blog Surfer, and Facebook, just to name a few. This means that not only do you need to write (and write well?), but you need to do marketing as well.

Writing is a skill that is hard to master. I am not a natural writer. Before this blog the only things I wrote for myself and not a class, were poems. I started writing my blog, thinking that there weren't too many good resources of migraine information available. That I could provide information from my own experiences in a light or funny way and fill a niche. While I have written some posts that I feel met my personal expectations, I think that sometimes I write too deep. Well, at least it comes from the heart.

Accurate and reputable resources were very hard to find at first. There were a couple of good sites and blogs back then and now there are many more valuable sites for finding good straight information. Now there are migraine news sites that report in accurate terminology and are readable, insightful and relevant.

I have a much better understanding of blogging and still think that I can provide information that encourages my readers. Blogging between migraines can be a challenge, but I have found it totally invigorating for me. Thank you to all my readers. I hope that I that I am able to continue providing a reason to return and maybe for a different point of view.  Take a look below right, for a list of some of the blogs I read. Thanks again!

 

Migraine Gives Us Lives Lived In-Between

Seems I live a life (of or in) 'between'. I do live a life, only it seems to be in shorter spurts than that of others. A life in between migraines. Between pain and the dread of it returning. Between migraines and depression. Between sickness and health. Between, in bed and going back to bed.

This isn't a life that is just between me and my family. It is between me and my hobbies, my friends, my work. Between prescriptions, doctors visits, and clinics. Between enjoying time with family or friends and the inability to stand. And, I live between hopes. The hope of life without migraines, without living in a cave, without taking handfuls of medications, without wearing sunglasses day and night.

It is a life between us, the millions that suffer from migraine disease. It is because of the 'between' that I live my life, write this blog, share my story and share information that I find useful. But, let's not keep it between us. ;)

 

Migraine, There Was A Time

Some of us can hardly remember a time when we were not plagued by our migraine illness. Migraine takes little bits and large chunks of our time here on this earth. But, for most of us there really was a time when;

You laughed so hard, something flew out of your nose.



Bending over to put on socks and shoes did not cause your temples to throb.

You could enjoy the beauty of the rain.

You could look at the beautiful blue sky without sunglasses.

Waking up to Folgers in your cup was the best start to a great day. Now you can't have the caffeine.

Music was for playing LOUD.

An evening glass of wine helped you relax.

You would rather work in the yard than lay in bed.

You enjoyed having the car windows down and letting the blowing wind race through your hair.

You could make plans for next weekend and stick with them.

People only looked at you funny when you told a joke.

"How are you doing?" didn't require a pregnant pause before answering.

Your pillow only recognized you during regular sleeping hours.

The sound of children playing warmed your heart and didn't hammer your head.

Working around the house was a pleasing choice and not a neglected chore.

You could tolerate someone wearing too much cologne.

Everyday was one in which you could keep you feet on the ground.

You could eat anything you wanted without fear of food allergies.


You know that at one time, there are a million more wonderful things that could happen in your life that didn't slow you down, cause pain, and ruin plans. Please feel free to add to this list. I would love to share your ideas as well. Also, sorry if the attached videos gross you out. I find them very funny.

 

Migraine Blasphemy

We read, hear, and see supposed migraine causes and treatments every day. The sheer multitude of incorrect information causes even the the most upbeat person to lose their belief in an eventual cure. There are certainly more questions than  answers. Scientists and laypersons around the world are working on it, and many claim to have it already.

So how do we know what is right and what is wrong? What is the cause of migraine? Is there one cure that works for every migraineur? What are the best sources for diagnosis and treatment? How many licks does it take to get to the center of a Tootsie Pop?(Just making sure you are awake      and everyone knows the answer is 2.)

There is so much more disinformation than truth to be found on the web. It makes this tool useless or too overwhelming at times. Some of these questions have answers and some do not. It can be a blasphemy of migraine information. The internet is a wonderful thing. Anyone can say almost anything they want. When searching for the truth, you must wade through a lot of polluted disinformation. Many people will follow the very first link that Google provides and accept it as definitive and it may not be. Some web sources provide disinformation because they don't know any better, and some because they are trying to sell you something. Just be aware of the blasphemy of truth about migraines on the internet.

I thought that I would provide a list of web sources that I trust. These sites strive to provide articles that have current information. This list is not the quintessential list of all time. It is a good collection of current web sites to use for the unbiased answers to migraine questions.

• MAGNUM ~ http://www.migraines.org/
• Migraine.com ~ http://migraine.com/
• National Headache Foundation ~ http://www.headaches.org/education/Headache_Topic_Sheets/Migraine
• Headache and Migraine News ~ http://headacheandmigrainenews.com/
• Putting Our Heads Together ~ http://www.puttingourheadstogether.com/

I bet you noticed how short this list is. Some may disagree with my choices. Feel free to comment and state why you would add to, or subtract from my list.

 

Could It Be Post Migraine Stress Disorder?

I asked if there was a  legit term for this back in May of 2009. I didn't get anyone saying that it was not. So, I visit the question again. 

 A migraine hangover is sometimes used to describe that time after an attack, when you may not be experiencing the migraine, but still feel many of the symptoms. A hangover almost sums it up, but I think that this could also be called Post Migraine Stress Disorder (PMSD).

When we are exhausted, disoriented, nauseous, and weak with the fear that at any moment the migraine monster will rear it's ugly head, and try to take your head off at the eyebrows. This is PMSD.

There is no doubt that migraine disease is harsh. But there is nothing pretty about the aftermath either. We dread the everyday happenings that could send us back to the abyss. Be it the bright sunlight reflecting from a car windshield, The sound of a small child crying  nearby, the strong smell of someone's perfume, a change in the weather, or the lack of sleep even though you haven't left the bed for three days straight. This is PMSD. 

PMSD may affect many migraine sufferers. All we can do is try our best to overcome it and return to our family and friends, and what passes for our normal world as quickly as our bodies will allow.

Obviously I'm not a professional so I don't know if I have the right to give this ailment an official title or not, but this is what I call it. Do you have a different name for it? Or do you suffer from PMSD as well? Please tell me what you think.

 

Would've, Could've, Shoud've

I have been remiss the last couple of weeks. I haven't posted since Dec. 8, and for no apparent reason. I would've had enough time to write several posts around the hectic holidays and my unscheduled migraines.  But, I let the joyous nature of the season keep me from even sitting down to the computer.

If I had planned my time more wisely, I could've incorporated several life lessons that I learned over the last month. While I was cleaning, cooking, decorating (did I say cleaning?) I found myself learning how to accomplish some tasks easier, especially as the frequency increased. Maybe I'll be able to put some things down into the ether as my blog continues in this, my third year.

I should've put a lot of my thoughts down on paper. Now it's too late for most of them as they have been lost to my minds eye. A few remain and I hope to take many opportunities to write and share my thoughts about the past, present and future of dealing with diseases like migraine. These are my thoughts for the new year.

I decided to not make any resolutions for the New Year. The habit of making plans, which criticize, seek approval for, and/or mold my life, is too much of a daily event for me.


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The Faces Of Migraine Pain

There are a lot of people that are three-faced. One face proclaiming nothing is wrong, it's a pleasant day, I just won the lottery! (Don't we wish?). Another that acts as a mask to hide our agony. And, another face that touts the pain and suffering of an invisible illness.

A good day brings us out into the world of those living a normal life and shows others what we really look like. This is the face we're supposed to have all the time. If we're lucky, we have back to back good days. Days of relief that allow us to open our eyes, sniff the air, and realize the beauty of the day. But, there are those days...

It is said, that without the bad, we wouldn't realize how good GOOD really is. Our heads would rather not have to make this distinction. We put on a mask to hide behind. On this surface the pain and anguish that lingers beneath are hidden from view. We may look to be normal, but we carry the scars of the pain and sometimes even from pain that lingers from therapy. If you look, you'll notice the squinted eyes behind the foster grants. You'll notice the pursed lips and the droop of face and limbs. The demon grabs our attention from the inside out. Maybe at first we can hold the look of pain at bay. We can look like a normal person, but underneath the facade the brute hammers away.

It lurks, and bides the time. It WILL attack our pain receptors and distort our features and perceptions. Fiendishly, the migraine scalds our senses. It hits so hard the ripples on the face cannot be ignored any longer. The monster takes over our faces, bodies, speech, and gait. It interferes with our ability to see, to touch, to taste. The taste of life changes in our mouths, our eyes, and ears till it is unrecognizable. We may be altered physically and the difference obvious to our friends and loved ones. The "Monster Face" darkens our own faces till we lose the human features that are our own.

This is the face of migraines.

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Sunshine In The Shade

In the shade of life the world can be too much. As a chronic pain sufferer, I know for a fact that some of us live in the shadows. Dark rooms, soft lights, dark glasses at all times of the day and night. Trying desperately to keep ourselves hidden from the light of day. These shadows extend beyond the light and dark on the outside to the darkness that dwells inside of us. No, I'm not talking good and evil. It's more like the difference between our feelings of inadequacy and hopelessness, and the knowing of hope and happiness.

Our insides can feel cold and empty. Can feel battered and bruised. And, not just from the beating we can take from life, but also from the blows that we throw at ourselves. We might concentrate on a bleak future or the virtues we lack. Others may not see our distress, but that doesn't mean it's not there. So, we live in the shade with sunshine all around us.

All it takes is a single step to see some sunshine in our lives. It's there for each and every one of us. There is always some light no matter how dark the room may be. Keep your eyes open long enough and you will begin to see the things around you. A little longer and you will see the shadows being cast by the objects in the room. A little light can be found in any situation. Keep your eyes open long enough and even the darkest life casts shadows of it's own.

Know that as bad as it may seem there's a little light there. Grasp it, hold on to it, and pull on it toward the horizon. Let it grow in your heart till it lifts your spirits up. Use it to leave the dark, the shade, whatever pain you struggle against in your life. Make the most of any light in the dark. Take that hope and follow it toward the sunshine of your future.

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Stink'n Think'n

There are many ways that our thought processes can doom us to facing the same situations over and over again. It is the distortion of the truth that sometimes keeps us from reaching a positive mental attitude and subsequently happiness. Most of us are guilty of one type of distortion or another. Our thought processes can be altered when we know what to look for and avoid.

I'm not going to tell which of these apply directly to me, but I will say that the migraine disease that I have is not the only problem in my life. The pain can cause me to distort my view of the world and my situation in it. Then I have two problems to deal with; Migraine and depression.

This list of cognitive distortions is not of my own making. I've seen it several places online and I have tried to rephrase each idea to help in understanding Stink'n Think'n.

1. If things to you are black or white, then your thinking may be All-or-Nothing. If you are not able to do something perfectly, you think of yourself as a failure. Nothing is ever black and white and we can fall a little short and still not be a failure.

2. If you see any single event, especially negative, as a never-ending pattern then you are Overgeneralizing. Give things a chance and sooner or later you will receive the outcome you desire.

3.  You may be using a Mental Filter by picking out a single negative detail and focusing on it until your reality becomes diluted. Learn to pick out the positives as well as negatives for a positive attitude.

4.  Don't Disqualify the Positive. Let positive experiences be what they are. You may think they do not count for some reason or another, but don't maintain a defeatist attitude that is contrary to your every day experiences.

5. Sometimes events can be interpreted negatively by Jumping to Conclusions. Even when there are no clear cut facts to support our conclusions. Sometimes we Mind Read others and conclude that they feel negatively about us without finding out for certain. We believe we can tell the future by anticipating a bad outcome. By feeling that the prediction is already an established fact we are committed to  Fortune-Telling.

6. Exaggerating how important things are by magnifying your failure or someone else's achievement, or by shrinking the importance of things till they are insignificant. This Magnification/Minimizing is also called the binocular trick. Looking down the binoculars the wrong way always distorts our view of the scene.

7.  Attributing terrible consequences to the outcome of an event is Catastrophizing and prevents you from ever foreseeing a positive outcome. You feel that the slightest mistake could cost you your job. friends or even marriage.

8.  Feeling that your negative emotions dictate the way things really are. Your Emotional Reasoning is that if you feel it, it must be true. Just because you feel something is right doesn't make it so. Try not to let emotions determine whether things are right or wrong.

9.  Using "Should" statements in order to motivate yourself causing you to feel like you should be punished before expected to do anything. The emotional consequence is guilt when you use "should", "shouldn't", "Must" and "ought". Directing these statements toward yourself or others, makes you feel guilt, anger and frustration.

10.  An extreme form of overgeneralization is referred to as Labeling and Mislabeling. You attach a label to yourself instead of describing any error that you may make. Labeling (and mislabeling) yourself as a "loser" or other negative label as you overgeneralize a single negative event as par for the course.

11. Seeing some negative characteristic of yourself as causing a negative event. Or, taking responsibility for things that were not your doing is Personalization. Everything that happens is not caused by you. Negative things are going to happen to everyone that doesn't mean you made it happen.

12. When you concentrate on a thought that may be true, but does not gain anything by focusing on it, is Maladaptive Thinking. Focusing on some past event will not ever change that event. The past cannot be changed by anything we do in the present and we should not concentrate on those events.

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You Know Your In The Migraine Zone When...

My post yesterday made ME think about "The Migraine Zone" and when we know we are entering it (I'm also pleased with my photoshop work and wanted to use it again. BTW, I'm an expert at Photoshop and Illustrator, if you need some custom work let me know).
There may be as many triggers as there are migraineurs. I thought I would list some of the things which trigger my migraines so, we might commiserate.

This list is not complete by any means, so feel welcome to add your migraine zones in a comment.

~~~~~  In No Particular Order  ~~~~~

You know you're entering "The Migraine Zone" when...

• Walking across the Walmart parking lot.
• Walking into Walmart and your buggy has a bad wheel.
• Just being in Walmart.
• Bed Bath and Beyond (enough said)
• The perfume counter of any department store.
• In a waiting room with someone who has enough perfume/cologne on, to douse an elephant.
• You find out your season ticket to your college football games is directly beside the visiting team's band section.
• Your driving along feeling fine and all of a sudden, you're blinded by the reflection of the sun on another car's chrome.
• The candy isle of the store is permeated by the smell of wintergreen (I'm allergic and any time I have any allergic reaction, it immediately puts me in the zone).
• Just before a storm with wind and rain. I usually feel better after the rain starts.
• There is a sudden change in temperature or barometric pressure.
• Loud, shrill, or annoying noises.
• The smell of incense.
• I wake up in the morning and I can't open my left eye because it's so puffy.
• I start to stutter.
• My eyes start to tear up and I see floaters.
• The left side of my face starts to droop.
• I don't get enough sleep.
• I get too much sleep.
• Sitting in front of the computer screen too long (and it's variable).
•   
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Related Articles

• Migraine Hangover or Depression? (againstthegraine.blogspot.com)
• Migraine and Severe Motion Sickness (headacheandmigrainenews.com)
• Five Tips for Those Newly Diagnosed with Migraine (wordmetropress.com)
• Common Migraine Triggers (HealthCentral.com)

Thanks

Sorry, for being so slow in making this post.

It's great to find out that someone likes my blog. Especially other migraine bloggers. I want to thank all the people that included me in their list of bloggers worthy of the Versatile Blogger Award. Special thanks to Jasmine of Jasmine's Cove who got there first ;) It's especially cool to get some recognition from fellow bloggers, to whom I look up to and appreciate so much.

In accepting this award I am expected to follow 4 rules, of which number # 1 is to thank the person who gave you the award. Jasmine, I thank you again, as you have been there for me several times when my posts may have reflected the need for validation of my feelings. I appreciate your comments to my posts (especially since I don't get that many ~ hint).

Rule # 2 is to share seven things about myself. Here you go.


1. When I wake up in the morning I pray before I open my eyes. Especially for a no migraine day.
2. I lost my marbles when I was young, and most of my friends think that I'm still crazy.
3. I believe life is something that you have to live out loud. Though, it is harder to do when you have been on disability for three years.
4. I believe there is nothing that I cannot do, with the help of God.
5. Flag day is my favorite holiday, because it is the anniversary of my marriage. Good planning, eh?
6. I like to run with the young dogs. I still enjoy playing sports, especially basketball, with guys half my age.
7. I prefer the title of Technology Stud to Geek, after working for more than 20 years as a web/multimedia designer, IT project manager, and technology director. 

I am having trouble with rule #3, passing the award to 15 other bloggers. Just about everyone that I read is fantastic, as witnessed by all the other people that have already given them the Versatile Blogger Award. Here's my attempt.

1. Abi's Migrainous Wanderings
2. Brainless Blogger
3. Headache and Migraine News
4. Heading Home
5. Jasmine's Cove
6. Life Stewardship
7. Migraine Truth
8. Mom Migraine
9. MyMigraineConnection.com
10. The Good Sport
11. My life with Migraine
12. Pain in the Head
13. Somebody Heal Me 
14. The Daily Headache
15. weathering migraine storms


Hey, I did it! Now, I just need to contact the writers of these fine blogs and let them know how great they are (rule #4)!

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iBlog

Today, my blog hits 100. That's a hundred posts since I started in 2008. Not the best post rate possible, but pretty good I think. I have done a lot with design layout and widgets, but quality of the content has been my major concern (I hope you agree). From the first post Migraine: Beginning or End, I have been on a journey of understanding and hope.

My blogging was sparked by a radical change in my life and my wish to begin a dialogue with other people in a similar situation to my own. I have made many new friends online. Almost all of which I have never met in person. Maybe only a couple of which I would recognize if I passed them on the street. But, friendship does not require these things. It does not require that I know everything about my friends. My post, I Hate Migraines shows that we can share feelings and emotions against the plight of suffering migraine and other invisible illnesses and that these shared experiences bring us together.

I have shared stories about myself. Puppy Noses and several others, convey the need for the ability to cull some humor or positive from even very painful situations. I also have shared experiences and feelings that draw on the dark side of having a chronic illness in posts like Living With Migraine Is Work, in which I discuss the effects on our personal lives and the ones we love. And, Dancing For Rainbows, tells the story of hope, which is something that all of us need to keep in perspective as we battle our illness.

Thank you for taking the time to read my posts. I hope that someone, somewhere, can find support and/or answers to questions provided by my life and my blog. Thank you for being a friend and sharing your input, for giving me uplifting advice when I've let my guard down against the monster. Being friends is about sharing experiences and giving support when needed. Now, as I set out towards two hundred posts, I thank you for being a part of my life. It's what we share that makes us friends.
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Twitter for Health; Just What We Need.

We are many things. We are women and not women, affluent and monetarily challenged.  We are all the colors and all the theologies of the world. We are leftist or right wing. We live above and below the equator.  We have as many differences as there are differences. Yet, we are the same.

As different as we can be, some of us are the same. We are computerized, have cell phones and email etiquette. We are literate, hooked-up and up-to-date. We may live alone or with others, or both. We may be all these things or none of them, but we are friends.

Our friends are the online-others that share our problems, that notice when we’ve been missing for a couple of days. They reach out to us when we are in agony and pain. Send us hugs and prayers when they are needed most. As friends they sometimes don’t know our face, have not heard the sound of our voice, or know where we call home. But we care for each other.

This is what Twitter provides us. This is what we want and need. Friends to share with, cry with, laugh with, and with whom to commiserate. Friends to share information, support, ideas, symptoms and successes. To our Twitter friends we will never, only be an Icon, an Alias, and an Ailment, no matter how we feel.

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Related Articles 

• climbing back on the horse (posted by MaxJerz at Rhymes With Migraine
• Dancing For Rainbows (Againstthe'Graine.blogspot.com)
• Letting The News Come To You (andrewsullivan.theatlantic.com)
• Unrest (Againstthe'Graine.blogspot.com)
  
• Find Friends to Improve Your Health and Longevity! (Sally Lever)